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donderdag 12 maart 2009

Constitutioneel exceem

Ben net weer terug van een tripje naar het UMC Radboud in Nijmegen.
Mijn dochter Dede heeft namelijk constitutioneel exceem.

Beschrijving: Constitutioneel eczeem is een niet-besmettelijke, chronische huidaandoening, die gepaard gaat met roodheid, zwellingen, vochtblaasjes, vochtafscheiding ('natten'), kloofjes en littekens. Het belangrijkste kenmerk is echter de jeuk, die vaak heel hevig kan zijn. Zo hevig, dat men er 'gek' van wordt. De huid van mensen met constitutioneel eczeem is slecht in staat vocht vast te houden en men heeft dan ook vaak een (extreem) droge huid.

Mensen met constitutioneel eczeem hebben vaak een (over)gevoelige huid die, sneller dan de huid van een gezond iemand, op allerlei prikkels uit de omgeving reageert. De beste remedie lijkt dan ook ervoor te zorgen dat men zo weinig mogelijk met die prikkels in aanraking komt. In de praktijk is dat echter niet zo simpel. Het is niet altijd duidelijk welke prikkels de klachten veroorzaken. Bovendien geven bepaalde prikkels niet altijd dezelfde klachten.

Constitutioneel eczeem verschijnt meestal bij zeer jonge kinderen, vaak nog voor hun eerste verjaardag. Maar in principe kan de aandoening op iedere leeftijd voor het eerst optreden. Er zijn dan ook mensen die pas op latere leeftijd 'zomaar ineens' last van eczeem krijgen. De aandoening kan enkele maanden klachten geven, maar het kan ook jaren duren. Perioden zonder klachten wisselen dan vaak af met perioden waarin het eczeem ernstig is. Gewoonlijk blijft het eczeem gedurende enkele jaren bestaan om dan weer te verdwijnen, soms voor het verdere leven. We zeggen dan dat de persoon in kwestie over zijn eczeem is heen gegroeid. Een kleine groep (25%) houdt veel langer last van het eczeem en heeft er na zijn twintigste verjaardag nog steeds last van. Maar ook bij hen neemt de ernst van het eczeem meestal af bij het ouder worden.

In Nederland hebben circa 400.000 mensen constitutioneel eczeem, ongeveer 2,5% van de bevoling. Daarmee staat de aandoening op de vierde plaats in de top-10 van chronische aandoeningen in Nederland. Bij kinderen is het na astma zelfs de belangrijkste chronische aandoening. Constitutioneel eczeem wordt ook wel atopisch eczeem, atopische dermatitis, neurodermatitis of neurodermitis genoemd. Bij jonge kinderen wordt het ook wel dauwworm genoemd. Bij het eczeem van jonge kinderen staan de vochtige ('natten') plekken namelijk voorop. Het lijkt wel op de dauwdruppels die je 's morgens op een weiland kunt zien liggen, vandaar 'dauw'. De uitslag is bovendien ringvormig, vandaar 'worm'.
Alles wat hierboven staat heeft mijn meisje dus ook. Op een gegeven moment was het zo erg, dat haar huid helemaal open lag op haar armen, benen, handen en gezicht. Door een juffrouw op school, die mij heel veel nuttige info kon geven, heb ik een verwijsbrief gevraagd voor het UMC Radboud in Nijmegen. Daar vonden ze gelukkig ook dat Dede snel hulp nodig had en ze werd binnen 2 weken in de dagbehandeling geplaatst. Nu 4 weken, 2x per week op en neer naar Nijmegen en 2x per dag insmeren met hormoonzalven en teerzalven later, heb ik weer een vrolijk meisje in huis die gelukkig ook weer goed kan slapen.
Haar huid gaat de goede kant op, ze is wel helemaal dicht, maar je ziet nog wel wat donkere exceemplekken. Zijn er mensen die ook constitutioneel exceem hebben, of een kindje die dat heeft dan is er De Vereniging voor Mensen met Constitutioneel Exceem
Ook kan je hier een berichtje achterlaten om er met andere mensen over te praten.

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